Fostering public engagement in the ethical and social implications of genetic technologies

Privacy Concerns in the Development of Personalised Medicine and the 100,000 Genome Project

With the UK launch of 23andMe’s home DNA testing kit, the legalisation of mitochondrial DNA transfer, and the 100,000 Genome Project underway, optimism abounds about the science of genetics delivering on its early promise. But there is also cause for greater caution and oversight than some biotechnology enthusiasts would like to admit. These developments are taking place with insufficient regard for their social and ethical implications. We can, however, be sure that the policies and regulatory frameworks currently being enacted will shape future decisions. A balance needs to be struck between the pro-R&D agenda that is driving a permissive regulatory regime, and sensitivity towards concerns about genetic technologies - that public consultation, if properly conducted, can alert us to. It is in the public interest that there is wider discussion ...

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Ethicsand @Ethicsand report on genetic privacy and the commercialisation of genetic data - covered by the Guardian… … …

Friday, 05 July 2013 via web • 3 retweets

Ethicsand Caldicott2 was not an independent review of privacy. Privacy laws have been redefined by the commercialization of personal data @Ethicsand

Friday, 05 July 2013 via web • 1 retweet

Ethicsand All #NHS users can now, by default, have their medical records accessed by pharma companies, to take part in clinical trials. Happy 65th!

Friday, 05 July 2013 via web • 6 retweets

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