Ethicsandgenetics 2013 A Shift in Privacy Law and the Attendant Risks
06 February 2014
EthicsandGenetics has published ‘A Shift in Privacy Law, and the Attendant Risks'. In this report, we identify and explore the risks associated with the government’s plans to establish a national genetic database and commercialise personal genetic information. Furthermore, the report assesses changes to privacy law and practice, in particular, the recent information governance review, and demonstrates that the new privacy framework fails to adequately safeguard highly sensitive information. The report reveals that the government are set to commercialise personal genetic information, collected from the population, and stored on a national genetic database. EthicsandGenetics can also reveal that now, by default, NHS users can be contacted to take part in clinical trials with private companies, without having expressed an interest in taking part in research of any kind, let alone clinical trials.